Welcome to "PuckerUp4PH" the home of a global campaign to boost awareness of the rare and virtually unheard of lung condition, Pulmonary Hypertension (PH).
Members of the PH community from all over the world joined forces to generate awareness of the disease by trying to entice over 40,000 people to provide a lipstick print (preferably blue) of their lips to set a new Guinness World Record™ as well as educating as many people as they could about Pulmonary Hypertension. On the 18th of February 2011 under the watchful eye of Guinness World Records™ representatives, nearly 55,000 blue kisses were logged and verified at a special event at Castlebrook High School in Bury, Lancashire in the UK and a new Guinness World Record was declared!!
Why Raising Awareness Of PH Is So Important
Evidence suggests that for every patient (children included) who has been diagnosed with PH, there's another going through a bewildering journey of 2-3 years, possibly being seen by up to 5 doctors, before a correct diagnosis is made. With a condition that is rare and virtually unheard of living with PH can be tough.
The good news is that , although PH is incurable, there are treatments that can help people with PH live longer and with a much better quality of life. The earlier the disease is diagnosed, the better the outcome. Furthermore, as the efforts to set this new World record and awareness raising campaign demonstrate there is network of people living with the condition wishing to reach out to offer friendship, support and understanding to others in the same position.
The Blue Lip Link
Blue lips or cyanosis can indicate the presence of number of conditions including PH, so, to try and boost awareness of the condition, the Blue Lip logo was developed by the Pulmonary Hypertension Association in the UK as a simple, eye catching motif to grab people’s attention and inspire them to want to know more.
Find Out More
On our latest news/blog page you can see a cross section of the fantastic efforts across the planet to get people to know more about PH. Whilst you are here please take a few minutes to find out more about the condition and its non-specific symptoms. We’ve also put together a series of short films featuring both people who live with PH and those who want to do all they can to raise awareness of the disease in memory of a loved one.
On our links page you'll be able to find a PH support group or association local to where you are logged on from who'd welcome your interest or support.